Elizabeth

What do you want others to know about lupus?

Lupus has changed my life. I’m only a shadow of who I used to be. I’m learning to cope with the new person I’ve become and some days are better than others. On my worst days, Lupus makes me sad, alone, and angry, even though I am luckier than most. On good days, I feel hopeful and look forward to more good days. I have the love and support of my family and my fri...

Why is lupus a cruel mystery to you?

Lupus makes me fat and stupid. Lupus makes me forget things. Lupus steals my day. Lupus makes me hurt. Lupus makes me cry. Lupus makes other people uncomfortable. Lupus makes my family suffer. Lupus makes me guilty for not being as sick as others. Lupus makes me itch. Lupus makes me sick at work. Lupus makes me push to get through the day. Lupus makes me drop things. Lupus makes my face burn. Lupus makes me pay for doing too much. Lupus makes my fingers hurt. Lupus makes me tired, oh, so very tired. Lupus makes me apathetic. Lupus makes me be able to do only one thing a day. Lupus makes me too tired to clean my house. Lupus makes me confused. Lupus makes me repeat myself. Lupus makes me stay out of the sun. Lupus makes people think I’m lazy. Lupus makes me have tiny little dots all over my body. Lupus makes my head spin. Lupus makes me forget names. Lupus makes me sad. Very, very sad.

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